The Boy Whose Skin Fell Off
- 上映年代：2004
- 地区：英国
- 主演： Edna Kennedy Jonny Kennedy 内尔·麦克安德鲁
- 更新时间:
剧情：Ayearago,36-year-oldJonnyKennedydied.Hehadaterriblegeneticconditi……
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A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his ...
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Robert 2011-12-18
这是一部用一个小时就能看完，却大概一生也摆脱不掉的纪录片。那种阴影远远不止于**的不安和心理的恐惧。我们的生命会，也本该因为世间存在这样的苦痛而变得沉重一些，脆弱一些。